Standing Up for Your Health: A Guide to Healthcare Advocacy as a Disabled Person

Article by Keisha Greaves

This issue of Embracing Disability has been generously sponsored by Happy Lilliput: a fashion brand that not only brings whimsical, eco-friendly clothing to life but also empowers marginalized communities in India. Learn more on their website.

Navigating healthcare can feel like an uphill battle for everyone, but when you’re living with a disability, those challenges are often magnified. For me, living with Muscular Dystrophy means that even the simplest medical appointments can become complex. From dealing with doctors who don’t understand my condition to having to advocate for the care I deserve, healthcare isn’t just about seeking treatment; it’s about fighting for the dignity and respect I deserve as a disabled woman.

And I know I’m not alone in this.

If you’re reading this and you’re disabled, you’ve probably had your fair share of frustrating experiences with doctors, nurses, and hospitals who didn’t understand your needs or weren’t prepared to meet them. But here’s the thing: you are your own best advocate. I’ve learned this the hard way, and I want to share what I’ve learned with you…